Living with Erythromelalgia has limited my world. I have had to limit my work options from being both a paper conservator and visual artist to being a visual artist only. I could no longer do both.

Erythromelalgia has forced me to focus on the most important elements in my life which are remaining a visual artist and continuing to function independently. Creating art gives me hope and identity.

Only others with rare life-limiting diseases understand how they change your life.
Life is never the same again.