El dedo de Ileana


Special Artistic Merit

I am a 22 year old from Puerto Rico. I suffer from Ehlers-Danlos Syndrome and so does my cousin Ileana. This is a representation of EDS with the marbles from my physical therapies, the flexible finger, the “EDS” block, and the famous zebra toy. The zebra is a national symbol for EDS sufferers like me. I can barely paint anymore because of the horrible pain caused by dislocations or subluxations, but I don’t give up on making an awareness of this painful condition. The painting took me about 12 hours because I had to take many breaks to rest my hands, back, and neck. I hope you can all enjoy my hard work. I hope we can find a cure or a treatment soon. Spread the word of its existence!

By Viviana Garcia

Age: 22
Disease: Ehlers-Danlos Syndrome
Submissions: 1
Date: November 19, 2010
City: Bayamon