At first, we were overjoyed with the birth of our grandson, Raphael. Then, there was the awful sadness when we learned that Raphael was affected with BARTH Syndrome. My only way to overcome my sadness has been to go back to painting. It still is my only way to express my confusion, my revolt, my hope. Theses colored and joyful marks are the expression of my hope that one day a cure will be found for my beloved grandson and all the other boys affected with Barth Syndrome.