Image
Top
Navigation

I Don’t Want to Be an Inspiration Today


Adults Category

Kam Redlawsk

I Don’t Want to Be an Inspiration Today Kam Redlawsk, 36 yo HIBM (Hereditary Inclusion Body Myopathy) AKA, GNE Myopathy HIBM is a progressive and debilitating muscle wasting disorder caused by a gene defect. 1million rare, it touches those between 20 to 30 and, although progression is slow, it typically leads to total disability within 10-15 yrs. I am an HIBM patient and advocate; a writer and artist. I illustrate moments and thoughts on living with such a rare & debilitating condition.