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Laura Wrede


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Adult

Laura Wrede

95% of those with Ehlers Danlos Syndrome-a heritable, incurable connective tissue disorder affecting skin, bones, joints, organs,veins,& more- never receive a proper diagnosis, going a lifetime misdiagnosed. Treatment is often poorly administered & doctors, if at all aware of EDS, have little to reference for care. It takes a team of specialists working together to address the painful, often disabling and sometimes fatal symptoms of this syndrome.The worst symptom?Fighting it all alone.