This photo was taken at my son’s favorite place…our local train station. Noah loved it here as he would watch the trains speed by. Batten disease has robbed Noah of the ability to see the trains he once loved so much…and in the not to distant future, this disease will take his young life. This photo was taken as I closed my eyes and tried to put myself in his dark world for a few moments…this is why I fight for these children…this is why I will not give up.
Disease: Late Infantile Batten Disease
Date: January 18, 2012
City: Downers Grove